Reference : Evaluation de la qualité de vie dans la maladie d’Alzheimer et les troubles apparentés

	Document type :	Scientific journals : Article
	Discipline(s) :	Social & behavioral sciences, psychology : Treatment & clinical psychology
	To cite this reference:	http://hdl.handle.net/2268/72403

Title :	Evaluation de la qualité de vie dans la maladie d’Alzheimer et les troubles apparentés
Language :	French
Alternative title :	[en] Assessment of quality of life in Alzheimer's disease and related disorders
Author, co-author :	Missotten, Pierre [Université de Liège - ULg > Département de personne et société > Psychologie de la sénescence >]
	Squelard, Gilles [Université de Liège - ULg > Département de personne et société > Psychologie de la sénescence >]
	Ylieff, Michel [Université de Liège - ULg > Département de personne et société > Département de personne et société >]
Publication date :	Jul-2010
Journal title :	Gérontologie et Société : Cahiers de la Fondation Nationale de Gérontologie
Volume :	133
Special issue title :	Pour une bientraitance: faut-il repenser le soin?
Pages :	115-131
Peer reviewed :	Yes
Audience :	National
ISSN :	0151-0193
Keywords :	[en] quality of life ; assessment ; Alzheimer ; people with dementia ; ADRQL ; Institution ; home
Abstract :	[en] Definition and measure of quality of life (QoL) raise many conceptual and methodological problems. Its assessment in Alzheimer's disease and related disorders is relatively recent. It uses self-assessment or proxy assessment tools. These are the subject of much debate and involve some biases. Current research mainly aims to assess the global level of Alzheimer's QoL, specify the impact of disease and identify the factors that influence it. Data resulting from recent studies using a same instrument, the Alzheimer’s Disease Related Quality of Life (ADRQL), show that the decrease in QoL is less catastrophic than what is usually stated. This is influenced by the level of dependency, by cognitive deficits and especially psychological and behavioural disorders. Moreover, QoL does not seem to decrease linearly during the staging. It may have periods of stability despite the worsening of cognitive impairment. QoL does not appear to be higher in subjects living at home. Current data could contribute to ethical debates about the meaning to life of Alzheimer persons, on their end-of-life and the finality of care.
Target :	Researchers ; Professionals ; Students
Permalink :	http://hdl.handle.net/2268/72403

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