Preliminary results of the Quality of Life Systemic Inventory for children in Pediatric Cystic Fibrosis: A tool for clinical interventions?

Poster (2013, June 14)

Objective: this study examined the generic and CF-specific QOL in CF children using a tool based on a modular clinical approach. Methods: Sample consisted of 12 CF children and 12 healthy children aged 8 ... [more ▼]

Objective: this study examined the generic and CF-specific QOL in CF children using a tool based on a modular clinical approach. Methods: Sample consisted of 12 CF children and 12 healthy children aged 8 to 12 years, matched by age and sex. The Quality of Life Systemic Inventory for Children (QLSI-C) assess both generic (20 items) and CF-specific (6 items) QOL. CF-specific module is empirically created from CFQ-R and discussion with medical staff. QLSI-C is a dynamic tool, using a VAS, which considers QOL (gap) like the difference between the present situation (state) and the expectations (goal). This difference is weighted by the importance (rank) that children assign for each life domains. QLSI-C is different from PedQoL, which consider QOL like an assessment of state score only. Results: Difference between CF and healthy children for the QOL score approached significance (F=3.63; p=0.07). Results by items show a significant difference for “autonomy” (F=4.30; p=0.05) and “frustration tolerance” (F=4.60; p=0.04) between the two groups. In addition, global scores in CF-specific module is correlated with global score in generic module for CF children (r=0.66 to 0.96). Assessment of QOL is the same for both generic (M=3.76) and CF-specific (M=3.76) module (p=0.53). Finally, descriptive statistics demonstrate that items which reflect the best QOL in CF children were based on social support unlike healthy children. Conclusion: QLSI-C is a clinical tool which distinguishes between children with CF and healthy children. Originality of this tool is strengthened by the consideration of individual life plan taking into account the particular situation of children with CF. [less ▲]

Psychosocial needs and perception of inequity: How spouses react to the cancer of their partner?

Poster (2013, May 28)

Background. Several studies have highlighted the importance of psychosocial needs in cancer patients’ spouses. Our study’s aim was to reduce these spouses’ needs, using a combination of two ... [more ▼]

Background. Several studies have highlighted the importance of psychosocial needs in cancer patients’ spouses. Our study’s aim was to reduce these spouses’ needs, using a combination of two psychotherapeutic methods: 1. Psychosocial needs’ organization into a hierarchy; 2. Problem-solving method. We also assessed perception of inequity, which is a new concept used in psycho-oncology. This perception focusses on two feelings that spouses might experience in their relationships: firstly, the feeling of overbenefit and underinvestment; secondly, the feeling of underbenefit and overinvestment. Method. A longitudinal design with three assessments (T0,T1,T2) and two groups (experimental, control) was employed. Spouses fulfilled questionnaires: socio-demographic questionnaire, Psychosocial Needs Inventory, Perception of Inequity, Hospital Anxiety and Depression Scale. At T0, all participants organised their psychosocial needs into a hierarchy. Experimental group practiced problem-solving method before control group. Indeed, experimental group practiced it between T0 and T1 while control group practiced it only between T1 and T2. Results. Thirty-seven spouses participated: N experimental group=19; N control group=18. Whenever the combination was given, repeated measures’ ANOVAs highlighted a significant decrease in unsatisfied psychosocial needs when participants have received both methods. Nevertheless, our results did not replicate previous findings according to which spouses experience a higher feeling of overinvestment and underbenefit than feeling of underinvestment and overbenefit. Discussion. Our results underline the interest of proposing psychotherapeutic methods to cancer patients’ spouses to reduce unsatisfied psychosocial needs. [less ▲]

Etude longitudinale des besoins psychosociaux des conjoints de personnes atteintes d'un cancer : hiérarchisation et résolution de problème

Poster (2012, December 18)

The existence and importance of psychosocial needs experienced by spouses of cancer patients have been demonstrated repeatedly. In order to reduce these needs, our study assesses the efficacy of the ... [more ▼]

The existence and importance of psychosocial needs experienced by spouses of cancer patients have been demonstrated repeatedly. In order to reduce these needs, our study assesses the efficacy of the combination of two psychotherapeutic methods: psychosocial needs' organisation into a hierarchy and problem solving. Our longitudinal and randomized study comprises three assessment times, separated from three weeks, (T0, T1 and T2) and two groups (experimental and control). At T0, both groups realize the hierarchy of needs. Between T0 and T1, only the experimental group practices problem solving. Then, between T1 and T2, the control group practices this method too. Questionnaires administered at each assessment time are: sociodemographic questionnaire, Hospital Anxiety and Depression Scale (HADS), Psychosocial Needs Inventory (PNI), self-efficacy questionnaire (GSES). Between T0 and T1, a general improvement in scores is expected in both groups: it is expected to be higher in the experimental group who completed the problem solving. Between T1 and T2, scores in the control group should improve to join those obtained by theexperimental group at T1. Thirty-seven people participated: experimental group (N=19, male=12, female=7) and control group (N=18, male=11, female=7). The results confirm our initial hypotheses and emphasize the importance of taking care of cancer patients' spouses. [less ▲]

L'intelligence émotionnelle et l'anxiété chez l'enfant: Quel liens?

Poster (2012, December)

Introduction: The concept of emotional intelligence (EI) is characterized by an individual difference to feel, identify, understand, regulate and use their own emotions and those of others. Several ... [more ▼]

Introduction: The concept of emotional intelligence (EI) is characterized by an individual difference to feel, identify, understand, regulate and use their own emotions and those of others. Several studies show a negative association between EI and various fields such as depression and anxiety. At various times, EI has been described as a protective factor against the development of certain disorders or dysfunctions. However, these studies have often been conducted with an adult population and fewer children. But a child is not a miniature adult, there may be differences between child emotional life and that of an adult. Objectives: This study aims to examine the internal consistency of the short version of the scale and French IE in children. Then, the association between EI and trait anxiety is studied, and the share of explanatory IE in the presence of trait anxiety in children, taking into account the effect of gender. Methods: A sample of 198 Belgian children aged between 9 and 13 years old completed the Trait Emotional Intelligence Questionnaire - Short Form Children (TEIQue - CSF) and the State Trait Anxiety Index for Children (STAIC). Results: We observe a good internal consistency of the French version of TEIQue - CSF (α = .83) and a negative correlation between EI and STAIC (r = - .43). The regression analyzes show that EI significantly explains 18% of the variance STAIC. No gender effect was observed. Discussion: As expected, this study demonstrates a negative association between emotional intelligence of the child and the presence of anxiety symptoms, as well as the lack of gender effect in the scores of EI. We also note that the scores TEIQue - CSF significantly predict the presence of anxiety symptoms in boys as well as girls. This is consistent with other studies in a population of adults or adolescents. [less ▲]

Ajustement des parents d'enfants souffrant de mucoviscidose. Influence des facteurs psychosociaux et des stratégies de coping sur la qualité de vie

Book published by Editions universitaires europeennes (2012)

La prise en charge des enfants souffrant de maladie chronique s'est progressivement déplacée de l'hôpital à la maison où les responsabilités, concernant la gestion de la maladie, reposent sur les épaules ... [more ▼]

La prise en charge des enfants souffrant de maladie chronique s'est progressivement déplacée de l'hôpital à la maison où les responsabilités, concernant la gestion de la maladie, reposent sur les épaules de la famille. Les chercheurs, en reconnaissant ces changements, ont commencé à étudier le contexte familial de l'enfant avec une maladie chronique (Walker, Ford & Donald, 1987). Toutefois, la particularité de la prise en charge d’un enfant atteint de mucoviscidose a été peu étudiée. Par ailleurs, les connaissances dont nous disposons sur la manière dont les parents gèrent la prise en charge de la maladie de leur enfant sont principalement basées sur des recherches ne tenant compte que de la perspective des mères, en ignorant celle des pères (Hayes & Savage, 2008). Par conséquent, les objectifs de cette étude globale, de nature exploratoire, sont: (1) mettre en évidence les différentes variables qui peuvent jouer un rôle dans l’ajustement des parents à la maladie de leur enfant; (2) identifier l’impact de ces variables sur la qualité de vie de ces derniers; (3) tester l’existence de différences dans les résultats selon le sexe du parent. [less ▲]

Comment s’en sortent-ils ?

Article for general public (2012)

L’Inventaire Systémique de Qualité de vie pour Adolescents (ISQV-A) : qualités psychométriques et application clinique

in Revue Francophone de Clinique Comportementale et Cognitive (2012), XVII(1), 44-56

Purpose: The objective was to determine the psychometric properties and the clinical application of a new Quality of Life self-assessment questionnaire suitable for adolescents 13 to 18 years old: the ... [more ▼]

Purpose: The objective was to determine the psychometric properties and the clinical application of a new Quality of Life self-assessment questionnaire suitable for adolescents 13 to 18 years old: the “Inventaire Systémique de Qualité de vie pour Adolescents” (ISQV-A). Methods: This was a cross-sectional validation study. 171 French adolescents have completed the ISQV-A. Other tools were used: the State-Trait Anxiety Inventory for Children (STAIC), the Children’s Depression Inventory (CDI). Results: The internal consistency of the four indices of the ISQV-A (state, goal, rank and gap) is satisfactory. All scores have their own specificity. The data show the convergent validity, test-retest fidelity and applicability of the ISQV-A. Conclusions: The adequacy of this new tool seems evident to highlight the adolescent’s quality of life. We will also discuss its clinical relevance into a cognitive behavioural approach. [less ▲]

L’Inventaire Systémique de Qualité de Vie pour Personnes Agées (ISQV-65+©) : premiers éléments de validation

in Revue Francophone de Clinique Comportementale et Cognitive (2012), XVII(1), 69-82

This article discusses the measurement of quality of life for old people through the preliminary validation study (applicability, reliability and validity) of a questionnaire specifically designed for ... [more ▼]

This article discusses the measurement of quality of life for old people through the preliminary validation study (applicability, reliability and validity) of a questionnaire specifically designed for this population: the Quality of Life Systemic Inventory for old people (QLSI-65+©). This validation is based on a sample of 54 non-institutionalized adults aged 65 to 85 years. All completed a sociodemographic and medical questionnaire, the QLSI-65+©, the Geriatric Depression Scale (GDS) and the Satisfaction with Life Scale (SWLS). The results show a good applicability of the QLSI-65+©. The internal consistency of the indices (State, Goal, Rank and Gap) is very satisfactory. All indices are correlated each other to varying degrees (reliability). Correlations between State, Goal and Gap QLSI-65+© global scores and GDS and SWLS total scores are significant (convergent validity). Finally, State, Goal and Gap QLSI-65+© global scores of the sample are significantly better than those of 17 informal caregivers of people with dementia (validity in terms of know group differences). [less ▲]

La mesure de la qualité de vie : le modèle des systèmes de contrôle, une approche théorique pratique pour parler du bonheur

in Revue Francophone de Clinique Comportementale et Cognitive (2012), XVII(1), 4-14

Estime de soi, comportement à risque et qualité de vie chez des adolescents de 13 à 18 ans

Conference (2011, September 08)

L’objectif de l’étude était d’évaluer les capacités de changement d’un adolescent présentant un comportement à risque : être fumeur. Septante adolescents (13 à 18 ans) ont été recrutés : le groupe ... [more ▼]

L’objectif de l’étude était d’évaluer les capacités de changement d’un adolescent présentant un comportement à risque : être fumeur. Septante adolescents (13 à 18 ans) ont été recrutés : le groupe expérimental comprend trente-sept jeunes fumeurs ; le groupe contrôle trente-trois jeunes non -fumeurs. Les fumeurs ont été vus trois fois alors que les sujets du groupe contrôle ont été vus 2 fois sur une période de trois mois. Les principaux questionnaires sont : un questionnaire sociodémographique, l’échelle d’estime de soi de Rosenberg, l’Inventaire Systémique de Qualité de Vie pour Adolescents, trois questions ouvertes qui portent sur le changement, les ressources et la confiance en soi. Les techniques d’intervention sont la balance décisionnelle de l’entretien motivationnel et l’implémentation d’un comportement. Les résultats montrent un effet des entretiens motivationnels chez les fumeurs sur la perception d’être prêt au changement (p = 0,002), sur une meilleure perception de leurs ressources (p<0,001) et sur une augmentation de leur confiance en leur capacité de changement (p = 0,02). L’estime de soi et le score d’écart de qualité de vie restent stables pendant les trois mois à l’exception du score de but des jeunes fumeurs. L’implication clinique de ces résultas sera discutée lors de la présentation orale. [less ▲]