References of "Etienne, Anne-Marie"
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See detailCOMMENT JE TRAITE ... L’arrêt cardio-respiratoire extrahospitalier : la fenêtre du centraliste 112
STIPULANTE, Samuel ULg; ZANDONA, Régine; EL-FASSI, Mehdi ULg et al

in Revue Médicale de Liège (2014), 69

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See detailAssessment using e-Health technologies in pediatric psychology: Developing an App on iPad for the Quality of Life Systemic Inventory for Children (QLSI-C)
Toucheque, Malorie ULg; Tilkin, Caroline; Dupuis, Gilles et al

Poster (2014, March)

Objective:Integration of e-Health technologies for purposes of both assessment and intervention has recently become an interest area in pediatric psychology. The purpose of this study is to present ... [more ▼]

Objective:Integration of e-Health technologies for purposes of both assessment and intervention has recently become an interest area in pediatric psychology. The purpose of this study is to present psychometric characteristics of a technology-based (i.e., iPad administration) approach for measuring quality of life (QoL) in children. Methods: Sample consisted of 80 children (8-12 years) recruited from elementary schools in Belgium. They completed the Quality of Life Systemic Inventory for Children (QLSI-C) twice over a two-week delay, in a crossover design that used paper and iPad-based modes of administration. QLSI-C takes a unique approach to assessing QoL relative to existing measures. Specifically, it considers QoL to be the difference (gap score) between the present situation (state score) and the child’s expectations (goal), weighted by the importance (rank) assigned for each life domain. Cronbach’s coefficient was computed to assess internal consistency for each of the four global scores (State, Goal, Gap, Rank). ANOVA was used to assess the equivalence of the new iPad and paper formats. Test-retest reliability was assessed using correlational analysis. Results: Alpha coefficients for the global scores were as follows: State (.87), Goal (.94), Gap (.72), and Rank (.79). ANOVA results indicate that main effects for group (p = 0.75) and time (p= 0.31) were not statistically significant, nor was the interaction effect (p = 0.86) for the QoL score (Gap). Correlations for the test-retest reliability of the 4 global scores ranged from .66 to .90. Conclusions: The iPad format of QLSI-C appears valid in comparison to the original paper format and test-retest stability for the iPad format is good. This technology approach to assessment is more attractive for children, decreases time for administration, and enhances the ease of scoring. Thus, these advantages might encourage both clinicians and researchers to consider using e-Health developments in assessment in pediatric psychology. [less ▲]

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See detailReliability and validity of the Quality of Life Systemic Inventory for Children (QLSI-C): Preliminary result of a modular assessment tool of quality of life using e-Health technologies
Toucheque, Malorie ULg; Etienne, Anne-Marie ULg

Poster (2014, March)

Objective: Use of generic versus specific tools in psychological assessment is a controversial issue. Generic instruments can be used to measure QOL for numerous chronic illnesses; however, they may not ... [more ▼]

Objective: Use of generic versus specific tools in psychological assessment is a controversial issue. Generic instruments can be used to measure QOL for numerous chronic illnesses; however, they may not be sensitive to particular aspects of the disease. Unfortunately, disease-specific measures cannot be used to compare results across diseases or conditions. The QLSI-C is an assessment tool that uses a modular approach developed to overcome these shortcomings. QLSI-C was devised as a generic scale to be integrated with disease specific modules. The purpose of this study is to report on reliability and validity of the QLSI-C generic scale and the cystic fibrosis (CF)-specific module. Methods: QLSI-C was administered to 20 children with CF and 20 healthy children (ages 8-12 years) in Belgium. Internal consistency was assessed using Cronbach’s coefficient. Validity of the QLSI-C was measured using the known-groups method, i.e., analysis of variance (ANOVA) to distinguish between healthy children and children with CF. To examine the validity of the QLSI-C, correlations were calculated between the generic scale and CF-specific module. Results: Internal consistency for the QLSI-C generic scale with the CF-specific module was good ( =.82). ANOVA results revealed a significant difference between CF and healthy children for the QOL score (p=.005), with higher average scores (i.e., lower QoL) for CF children (M=4.35) than healthy children (M=1.25). Correlations between QoL scores on the generic scale and CF-specific module demonstrated medium effect size (r=0.47; p=.04). Conclusions: To date, three specific modules are available for the QLSI-C: (1) cancer; (2) asthma; (3) cystic fibrosis. Originality of this tool is strengthened by use of e-Health technologies (i.e., iPad app for administering the QLSI-C). Satisfactory psychometric properties and state-of-the-art use of technology suggests that the QLSI-C has potential utility for use in clinical trials, research, and clinical practice. [less ▲]

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See detailQuel rôle joue-t-on dans l’alimentation de nos enfants ?
Etienne, Anne-Marie ULg

Diverse speeche and writing (2014)

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See detailA French Translation of the Childhood Anxiety Sensitivity Index (CASI): Factor Structure, Reliability and Validity of This Scale in a Nonclinical Sample of Children
Stassart, Céline ULg; Etienne, Anne-Marie ULg

in Psychologica Belgica (2014), 54(2)

Introduction: Anxiety sensitivity (AS) refers to the fear of anxiety-related sensations due to beliefs that these sensations will lead to catastrophic outcomes. AS plays a central role in the etiology and ... [more ▼]

Introduction: Anxiety sensitivity (AS) refers to the fear of anxiety-related sensations due to beliefs that these sensations will lead to catastrophic outcomes. AS plays a central role in the etiology and maintenance of anxiety disorders. From a clinical perspective, it therefore seems important to possess a valid scale to assess AS in children. Objective, Method: This study examines the factor structure, reliability, and validity of the French translation of the Childhood Anxiety Sensitivity Index (CASI) in 353 Belgian children (9 to 13 years). Result: Results show that AS can be adequately measured using the French version of the CASI and conceptualized as a hierarchical factor structure with four lower-order factors – Physical Concerns, Mental Incapacity Concerns, Social Concerns, and Losing Control Concerns – loading on a single higher-order factor, Anxiety Sensitivity. The reliability was acceptable for the total scale. Hierarchical multiple regressions show that the CASI makes a significant contribution in predicting anxiety. conclusion: The data support the relevance of the French CASI in the assessment of AS in nonclinical children. [less ▲]

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See detailLa prise en charge des altérations cognitives en oncologie : une revue des études longitudinales contrôlées
Borghgraef, Cindy; Libert, Yves; Etienne, Anne-Marie ULg et al

in Bulletin du Cancer (2014), 101(9), 866-875

Objectif. Diverses études rapportent la présence d’altérations cognitives chez les patients atteints d’un cancer. Le but de cet article est de proposer une revue des études longitudinales contrôlées ayant ... [more ▼]

Objectif. Diverses études rapportent la présence d’altérations cognitives chez les patients atteints d’un cancer. Le but de cet article est de proposer une revue des études longitudinales contrôlées ayant évalué l’efficacité d’interventions visant à prendre en charge ces altérations cognitives. Méthode. Les études longitudinales contrôlées ayant évalué l’efficacité d’interventions visant à prendre en charge les altérations cognitives chez les patients adultes atteints d’un cancer et publiées entre 1993 et 2013 ont été identifiées, à l’exception des études impliquant des patients atteints de tumeurs ou de métastases cérébrales. Résultats. Parmi les interventions pharmacologiques (n = 11), certaines suggèrent l’impact positif du modafinil notamment au niveau mnésique et exécutif. Les interventions non pharmacologiques (n = 10) démontrent l’impact positif de programmes de revalidation cognitive et de stimulation, de psycho-éducation et de la méditation sur plusieurs fonctions mnésiques, attentionnelles et exécutives, objectives et subjectives. Les interventions non pharmacologiques entraînent des améliorations cognitives plus importantes que les interventions pharmacologiques. Conclusions. Certaines études longitudinales contrôlées semblent démontrer l’intérêt de prendre en charge les altérations cognitives observées chez les patients atteints d’un cancer. De nouvelles études évaluant l’efficacité d’interventions combinant prise en charge des altérations cognitives et soutien psychothérapeutique à l’adaptation psychologique des patients devraient être menées. [less ▲]

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See detailBesoins psychosociaux et perception d'iniquité: combinaison de méthodes d'action pour venir en aide aux conjoints de patients atteints d'un cancer - Une étude pilote
Wagener, Aurélie ULg; Bragard, Isabelle ULg; Jonius, Bénédicte et al

in Journal de Thérapie Comportementale et Cognitive (2014), 24

Cancer is a chronic illness that impacts both patients and family members. Spouses will often take on a caregiver role, meeting psychosocial needs such as health professional needs and information needs ... [more ▼]

Cancer is a chronic illness that impacts both patients and family members. Spouses will often take on a caregiver role, meeting psychosocial needs such as health professional needs and information needs. This caregiver role can also create emotional distress. Moreover, spouses might experience perceived inequity characterized by a combination of feelings of overinvestment and of underbenefit. This perception of inequity can also lead to emotional distress. Given the consequences of cancer on spouses, psychological interventions may be one means for helping them to cope. In this study, cognitive and behavioural methods are proposed to spouses in order to support them facing their partner’s cancer and their own issues. The overriding objective of this study is to satisfy the psychosocial needs of cancer patient spouses. In order to reach this objective, it compares the efficacy of two methods of action: 1/ hierarchical organization of psychosocial needs and problem-solving, and 2/ hierarchical organization of psychosocial needs alone. This research also aims to assess the influence of the perception of inequity that spouses might feel on the utilization of the two methods of action. The main hypothesis was that the combination of the two methods of action would have a greater and intensified impact on the assessed dependant variables than the utilization of the hierarchical organization of psychosocial needs alone. Thirty-seven spouses were randomly assigned into two groups: the experimental group (n= 19) and the control group (n= 18). The methodology provided identical protocols to the two groups with one difference in that the training period differed in order to measure the effect of training for problem-solving skills. The average age of participants in the experimental group was 58 (SD = 11) on average, and 57 (SD = 11) in the control group. They were asked to complete several questionnaires at three different time periods with a three-week time interval (T0, T1 and T2) assessing these dependent variables: psychosocial needs and emotional distress (anxiety and depression). Socio-demographic data and the perception of inequity were only evaluated at T0. At T0, all participants realized a hierarchy of psychosocial needs. Between T0 and T1, the experimental group trained in the problem-solving method while control group trained between T1 and T2 for this method. Repeated ANOVA measures were conducted to assess the evolution of the psychosocial needs. Student t-tests were computed to assess the influence of inequity perception on the utilization of the two methods of action. The results confirmed previous findings demonstrating the psychosocial needs in spouses of cancer patients. Indeed, it appears that these participants perceive more psychosocial needs than those of similar samples. This difference might be explained by the period of our intervention which occurred earlier than in experimental designs of similar studies. The overall emotional distress felt by our participants was characterized by anxiety. Therefore, being the caregiver of a cancer patient seems to foster anxiety more than depression. The results confirmed the main hypothesis showing a significant decrease of the number of unsatisfied psychosocial needs when participants have used the two methods of action. This decrease was observed whenever the combination was implemented. In other words, the combination of the two methods of action optimized meeting psychosocial needs. However, the perception of inequity did not seem to influence the utilization of these two methods. This research presents some limitations in the form of a small sample size and of a single assessment of inequity perception at T0. Nevertheless, the results of this preliminary study remain interesting and promising: further research could enhance the employed experimental design in a larger sample in order to obtain more robust results. [less ▲]

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See detailEtude longitudinale des besoins psychosociaux de personnes atteintes de cancer : Hiérarchisation et résolution de problème
Wagener, Aurélie ULg; Jonius, Bénédicte; DEVOS, Martine ULg et al

in Christophe, Véronique; Ducro, Claire; Antoine, Pascale (Eds.) Psychologie de la santé : Individu, famille et société (2014)

INTRODUCTION. L’existence et l’importance des besoins psychosociaux vécus par les conjoints de personnes atteintes de cancer ont été mises en évidence à plusieurs reprises. Afin de diminuer ces besoins ... [more ▼]

INTRODUCTION. L’existence et l’importance des besoins psychosociaux vécus par les conjoints de personnes atteintes de cancer ont été mises en évidence à plusieurs reprises. Afin de diminuer ces besoins, notre recherche-action teste l’efficacité de la combinaison de deux méthodes d’action : la hiérarchisation des besoins puis la résolution de problème ajustée à ces besoins. MÉTHODOLOGIE. Notre étude, longitudinale, randomisée, comporte trois temps d’évaluations séparés de trois semaines (T0, T1 et T2) et deux groupes (expérimental et contrôle). Au T0, les deux groupes réalisent la hiérarchisation des besoins. Entre T0 et T1, le groupe expérimental bénéficie de la résolution de problème. Entre T1 et T2, le groupe contrôle reçoit, à son tour, cette méthode. Les questionnaires administrés aux différents temps d’évaluation sont : données sociodémographiques, Hospital Anxiety and Depression Scale (HADS), Psychosocial Needs Inventory (PNI), questionnaire relatif au sentiment d’autoefficacité (GSES). HYPOTHESES. Entre T0 et T1, une amélioration générale des scores est attendue dans les deux groupes : celle-ci devrait s’avérer plus importante dans le groupe expérimental, ayant réalisé la résolution de problème. Entre T1 et T2, les scores du groupe contrôle, ayant alors pratiqué cette méthode, devraient s’améliorer et rejoindre ceux obtenus par le groupe expérimental au T1.RÉSULTATS. Trente-sept personnes ont accepté de participer : groupe expérimental (N=19, hommes=12, femmes=7) et groupe contrôle (N=18, hommes=11, femmes=7). Les groupes expérimental et contrôle présentent respectivement une moyenne d’âge de 59 et de 58 ans. Au T0, les scores moyens sur la HADS sont de 11,95 pour le groupe expérimental et de 13,94 pour le groupe contrôle ; le nombre moyen de besoins psychosociaux sur le PNI est de 29 dans les deux groupes ; les moyennes sur la GSES sont de 33,53 pour le groupe expérimental et de 32,33 pour le groupe contrôle. La récolte des données se poursuit et nous réaliserons des analyses de type ANOVA à mesures répétées afin d’évaluer les changements en fonction du temps (T0, T1 et T2) et du groupe (expérimental vs contrôle). [less ▲]

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See detailSpecificity of Gender Role Orientation, Biological Sex and Trait Emotional Intelligence in Child Anxiety Sensitivity: A Moderated Mediation Analysis.
Stassart, Céline ULg; Dardenne, Benoît ULg; Etienne, Anne-Marie ULg

in Personality and Individual Differences (2014), 71

The present study evaluates gender role theory as an explanation for the observed gender differences in anxiety sensitivity (AS) symptoms among children, and emotional intelligence (EI) as a protective ... [more ▼]

The present study evaluates gender role theory as an explanation for the observed gender differences in anxiety sensitivity (AS) symptoms among children, and emotional intelligence (EI) as a protective factor in the relation between gender role orientation and AS. Specifically, these two hypotheses are investi- gated in a moderated mediation analysis. The sample comprises 200 children, aged 9–13 years (95 boys, 105 girls). Results reveal that Masculinity (M) and EI are negatively associated with AS while Femininity (F) is positively associated with AS. Gender role orientation mediates the relation between biological gen- der and AS scores and EI moderates the relation between M (but not F) and overall AS symptoms. Findings support gender role orientation as an explanation for the observed gender disparity in AS; in the case of masculine orientation, the protective effect also depends on high emotional intelligence. This study pro- vides valuable insights for understanding the emotional socialization of children, as well as preventing or treating AS symptoms. [less ▲]

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See detailLaura. Enduring – or enjoying – endurance training.
Cloes, Marc ULg; Hody, Stéphanie ULg; Jidovtseff, Boris ULg et al

in Armour, Katheleen (Ed.) Pedagogical cases in physical education and youth sport (2014)

This chapter presents a pedagogical case presenting a 15-year-old girl who met some episodes of drop in blood pressure in the morning when beginning school. Her physical education (PE) teacher has to find ... [more ▼]

This chapter presents a pedagogical case presenting a 15-year-old girl who met some episodes of drop in blood pressure in the morning when beginning school. Her physical education (PE) teacher has to find a way to deal with such situation. Three scientists from physiology, fitness training and psychology analyze the scenario and underline the knowledge that should be used by the PE teacher in order to implement appropriate lessons. Sport pedagogists propose then a concrete contribution based on this interdisciplinary analysis. Such paper is a fantastic adventure for scholars who are invited to exchange their representations, knowledge et ideas in order to develop strong approaches. The refective process is an example for preservice education but also for all practioneers and PE teacher educators. [less ▲]

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See detailAnxiety and its time courses during radiotherapy for non-metastatic breast cancer: A longitudinal study
Lewis, Florence; Merckaert, Isabelle; Liénard, Aurore et al

in Radiotherapy & Oncology (2014), 111(2), 276-280

Purpose: To our knowledge, no study has specifically assessed the time course of anxiety during radiotherapy (RT). The objective of this study was to assess anxiety time courses in patients with ... [more ▼]

Purpose: To our knowledge, no study has specifically assessed the time course of anxiety during radiotherapy (RT). The objective of this study was to assess anxiety time courses in patients with nonmetastatic breast cancer. Material and methods: This multicenter, descriptive longitudinal study included 213 consecutive patients with breast cancer who completed visual analog scales (VASs) assessing state anxiety before and after the RT simulation and the first and last five RT sessions. Results: Pre- and post-session anxiety mean levels were highest at the RT simulation (respectively, 2.9 ± 2.9 and 1.6 ± 2.5) and first RT session (respectively, 3.4 ± 2.9 and 2.0 ± 2.4), then declined rapidly. Clinically relevant mean differences (P1 cm on the VAS) between pre- and post-simulation/session VAS scores were found only for the RT simulation ( 1.3 ± 2.7; p < 0.001) and first RT session ( 1.4 ± 2.4; p < 0.001). Five percent to 16% of patients presented clinically relevant anxiety (pre- and post-simulation/session VAS scoresP4 cm) throughout treatment. Conclusions: To optimize care, RT team members should offer all patients appropriate information about treatment at the simulation, check patients’ understanding, and identify patients with clinically relevant anxiety requiring appropriate support throughout RT. [less ▲]

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See detailQualité de vie de l’enfant avec antécédents oncologiques et adaptation parentale : étude exploratoire
Tilkin, Caroline; Toucheque, Malorie ULg; Missotten, Pierre ULg et al

in Revue Médicale de Liège (2014)

Cette étude envisage la qualité de vie (QV) de l’enfant avec antécédents oncologiques et celle de ses parents ainsi que la relation entre l’adaptation parentale et la QV de l’enfant. Deux groupes ont été ... [more ▼]

Cette étude envisage la qualité de vie (QV) de l’enfant avec antécédents oncologiques et celle de ses parents ainsi que la relation entre l’adaptation parentale et la QV de l’enfant. Deux groupes ont été créés : un groupe expérimental composé d’enfants avec antécédents oncologiques et leurs parents et un groupe contrôle composé d’enfants tout-venant appariés et de leurs parents. Les enfants ont rempli un questionnaire de QV; les parents ont complété des questionnaires évaluant les stratégies de coping, les représentations de la maladie, le stress parental et la QV. Les résultats montrent que la QV du groupe expérimental est satisfaisante et similaire à celle observée au sein du groupe contrôle. Les représentations des parents (menace et contrôle personnel), ainsi que les stratégies qu’ils mettent en place pour maintenir l’intégration familiale sont significativement liées à la QV de leur enfant. Cette étude met en évidence le besoin d’évaluer l’adaptation des parents d’enfant avec antécédents oncologiques et de développer des interventions ciblant leurs représentations et leurs stratégies de coping. [less ▲]

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See detailAvaliação da Qualidade de Vida Infantil: O Inventário Sistémico de Qualidade de Vida para Crianças
Fonseca, Marta; Missotten, Pierre ULg; Etienne, Anne-Marie ULg et al

in Psicologia, Reflexão e Crítica = Psychology, Reflection and Criticism (2014), 27(2),

Introduction: Children’s quality of life evaluation has specific methodological aspects. Objective: To examine the psychometric properties of the Portuguese version of the Child Quality of Life Systemic ... [more ▼]

Introduction: Children’s quality of life evaluation has specific methodological aspects. Objective: To examine the psychometric properties of the Portuguese version of the Child Quality of Life Systemic Inventory (CQLSI), which is based on an innovative conceptual and methodological approach to quality of life self-assessment, namely by being interactive and playful, having a psychometry which operates several scores and allowing an analysis of each domain of life. Methods: 120 Portuguese children, from 8 to 12 years old. Results: Internal consistency of the four scores of the CQLSI (State, Goal, Rank and Gap) is satisfactory; all scores have their own specificity. Data show convergent validity. On the other hand, no satisfactory factorial structure was found. Conclusion: Feasibility and psychometric adequacy of the CQLSI Portuguese version seems demonstrated. [less ▲]

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See detailThe Anxiety Sensitivity in Children: Developmental Perspective
Stassart, Céline ULg; Etienne, Anne-Marie ULg

Poster (2013, July 19)

Introduction. Anxiety sensitivity (AS) is the fear of anxiety-related sensations due to beliefs that these sensations will lead to physical illness, social embarrassment, loss of control and mental ... [more ▼]

Introduction. Anxiety sensitivity (AS) is the fear of anxiety-related sensations due to beliefs that these sensations will lead to physical illness, social embarrassment, loss of control and mental incapacitation. AS plays a central role in the etiology and maintaining of fear and anxiety. This work examines the gender and age effect on the AS scores. Method. Two hundred children aged 9 to 13 years completed the Childhood Anxiety Sensitivity Index (CASI). Results. Hierarchical multiple regression analyses showed that the sex and the interaction Sex*Age explain significantly the CASI scores. The interaction indicated that girls have higher AS than boys at the age of 9, 10 and 11 but not to 12 and 13 years. Discussion. Consistent with several studies, girls have higher CASI scores than boys. However, this difference disappears at the entrance of adolescence. This developmental observation is important in a prevention perspective of AS. [less ▲]

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See detailEvaluating the psychological impact of practice dispatch-assisted cardiopulmonary instructions using the ALERT protocol: preliminary results in Liege dispatching centre.
Hirtz, Elodie; Ghuysen, Alexandre ULg; STIPULANTE, Samuel ULg et al

Poster (2013, July)

ABSTRACT Background. The ALERT algorithm, an effective compression-only phone cardiopulmonary resuscitation (CPR) protocol has the potential to help bystanders initiate CPR. This study evaluates the ... [more ▼]

ABSTRACT Background. The ALERT algorithm, an effective compression-only phone cardiopulmonary resuscitation (CPR) protocol has the potential to help bystanders initiate CPR. This study evaluates the psychological impact of the CPR’s practice on untrained persons (UP). Methods. This is a quasi experimental longitudinal study (n = 153). We used: demographics data, CPR’ emotional characteristics; the Peritraumatic Dissociative Experiences Questionnaire ; the Way of Coping Check List and the Impact of Event Scale. Findings. Two psychological profiles: UP at high risk to develop a post traumatic disorder (higher average scores ; high emotional distress during the CPR) versus UP at low risk. Discussion. These preliminary results highlight the importance of identifying the psychological profile of the UP. For a CPR, UP at high risk should be treated differently: first, take the time to reduce emotional distress and then only talk about the CPR. This step could reduce the risk for PTSD [less ▲]

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See detailNew format of the quality of life systemic inventory for children (QLSI-C): preliminary results
Toucheque, Malorie ULg; Tilkin, Caroline; Etienne, Anne-Marie ULg

Poster (2013, July)

Background: This study assesses the test-retest reliability of the QLSI-C iPad version. Methods: Sample consisted of 40 children aged 8 to 12 years which completed QLSI-C twice over a two-week delay ... [more ▼]

Background: This study assesses the test-retest reliability of the QLSI-C iPad version. Methods: Sample consisted of 40 children aged 8 to 12 years which completed QLSI-C twice over a two-week delay. Participants were divided into 3 groups: 13 participants completed iPad (T0) – paper (T1) version, 13 others filled paper (T0) – iPad (T1) and 14 answered iPad (T0) – iPad (T1). Findings: Analysis of variance indicates that group effect (F(2,37) = 1,27, p = 0,29) and time effect (F(2,37) = 0,04, p= 0,84) is not statistically significant nor the interaction effect (F(2,37) = 0,08 p = 0,92). Correlations for the 5 global scores between iPad – iPad version is from .63 to .91 and between the 2 different formats is from .40 to .87. Discussion: QLSI-C test-retest stability and paper – iPad version equivalence are good. This new format is more attractive for children, decreases time for administration and makes easier the encoding. [less ▲]

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See detailPreliminary results of the Quality of Life Systemic Inventory for children in Pediatric Cystic Fibrosis: A tool for clinical interventions?
Toucheque, Malorie ULg; Etienne, Anne-Marie ULg

Poster (2013, June 14)

Objective: this study examined the generic and CF-specific QOL in CF children using a tool based on a modular clinical approach. Methods: Sample consisted of 12 CF children and 12 healthy children aged 8 ... [more ▼]

Objective: this study examined the generic and CF-specific QOL in CF children using a tool based on a modular clinical approach. Methods: Sample consisted of 12 CF children and 12 healthy children aged 8 to 12 years, matched by age and sex. The Quality of Life Systemic Inventory for Children (QLSI-C) assess both generic (20 items) and CF-specific (6 items) QOL. CF-specific module is empirically created from CFQ-R and discussion with medical staff. QLSI-C is a dynamic tool, using a VAS, which considers QOL (gap) like the difference between the present situation (state) and the expectations (goal). This difference is weighted by the importance (rank) that children assign for each life domains. QLSI-C is different from PedQoL, which consider QOL like an assessment of state score only. Results: Difference between CF and healthy children for the QOL score approached significance (F=3.63; p=0.07). Results by items show a significant difference for “autonomy” (F=4.30; p=0.05) and “frustration tolerance” (F=4.60; p=0.04) between the two groups. In addition, global scores in CF-specific module is correlated with global score in generic module for CF children (r=0.66 to 0.96). Assessment of QOL is the same for both generic (M=3.76) and CF-specific (M=3.76) module (p=0.53). Finally, descriptive statistics demonstrate that items which reflect the best QOL in CF children were based on social support unlike healthy children. Conclusion: QLSI-C is a clinical tool which distinguishes between children with CF and healthy children. Originality of this tool is strengthened by the consideration of individual life plan taking into account the particular situation of children with CF. [less ▲]

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See detailThe effect of communication skills training on residents' physiological arousal in a breaking bad news simulated task
Meunier, Julie; Merckaert, Isabelle; Libert, Yves et al

in Patient Education & Counseling (2013), 93(1), 40-47

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