References of "Etienne, Anne-Marie"
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See detailAnxiety and its time courses during radiotherapy for non-metastatic breast cancer: A longitudinal study
Lewis, Florence; Merckaert, Isabelle; Liénard, Aurore et al

in Radiotherapy & Oncology (2014), 111(2), 276-280

Purpose: To our knowledge, no study has specifically assessed the time course of anxiety during radiotherapy (RT). The objective of this study was to assess anxiety time courses in patients with ... [more ▼]

Purpose: To our knowledge, no study has specifically assessed the time course of anxiety during radiotherapy (RT). The objective of this study was to assess anxiety time courses in patients with nonmetastatic breast cancer. Material and methods: This multicenter, descriptive longitudinal study included 213 consecutive patients with breast cancer who completed visual analog scales (VASs) assessing state anxiety before and after the RT simulation and the first and last five RT sessions. Results: Pre- and post-session anxiety mean levels were highest at the RT simulation (respectively, 2.9 ± 2.9 and 1.6 ± 2.5) and first RT session (respectively, 3.4 ± 2.9 and 2.0 ± 2.4), then declined rapidly. Clinically relevant mean differences (P1 cm on the VAS) between pre- and post-simulation/session VAS scores were found only for the RT simulation ( 1.3 ± 2.7; p < 0.001) and first RT session ( 1.4 ± 2.4; p < 0.001). Five percent to 16% of patients presented clinically relevant anxiety (pre- and post-simulation/session VAS scoresP4 cm) throughout treatment. Conclusions: To optimize care, RT team members should offer all patients appropriate information about treatment at the simulation, check patients’ understanding, and identify patients with clinically relevant anxiety requiring appropriate support throughout RT. [less ▲]

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See detailQualité de vie de l’enfant avec antécédents oncologiques et adaptation parentale : étude exploratoire
Tilkin, Caroline; Toucheque, Malorie ULg; Missotten, Pierre ULg et al

in Revue Médicale de Liège (2014)

Cette étude envisage la qualité de vie (QV) de l’enfant avec antécédents oncologiques et celle de ses parents ainsi que la relation entre l’adaptation parentale et la QV de l’enfant. Deux groupes ont été ... [more ▼]

Cette étude envisage la qualité de vie (QV) de l’enfant avec antécédents oncologiques et celle de ses parents ainsi que la relation entre l’adaptation parentale et la QV de l’enfant. Deux groupes ont été créés : un groupe expérimental composé d’enfants avec antécédents oncologiques et leurs parents et un groupe contrôle composé d’enfants tout-venant appariés et de leurs parents. Les enfants ont rempli un questionnaire de QV; les parents ont complété des questionnaires évaluant les stratégies de coping, les représentations de la maladie, le stress parental et la QV. Les résultats montrent que la QV du groupe expérimental est satisfaisante et similaire à celle observée au sein du groupe contrôle. Les représentations des parents (menace et contrôle personnel), ainsi que les stratégies qu’ils mettent en place pour maintenir l’intégration familiale sont significativement liées à la QV de leur enfant. Cette étude met en évidence le besoin d’évaluer l’adaptation des parents d’enfant avec antécédents oncologiques et de développer des interventions ciblant leurs représentations et leurs stratégies de coping. [less ▲]

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See detailA French Translation of the Childhood Anxiety Sensitivity Index (CASI): Factor Structure, Reliability and Validity of This Scale in a Nonclinical Sample of Children
Stassart, Céline ULg; Etienne, Anne-Marie ULg

in Psychologica Belgica (2014)

Introduction: Anxiety sensitivity (AS) refers to the fear of anxiety-related sensations due to beliefs that these sensations will lead to catastrophic outcomes. AS plays a central role in the etiology and ... [more ▼]

Introduction: Anxiety sensitivity (AS) refers to the fear of anxiety-related sensations due to beliefs that these sensations will lead to catastrophic outcomes. AS plays a central role in the etiology and maintenance of anxiety disorders. From a clinical perspective, it therefore seems important to possess a valid scale to assess AS in children. Objective, Method: This study examines the factor structure, reliability, and validity of the French translation of the Childhood Anxiety Sensitivity Index (CASI) in 353 Belgian children (9 to 13 years). Result: Results show that AS can be adequately measured using the French version of the CASI and conceptualized as a hierarchical factor structure with four lower-order factors – Physical Concerns, Mental Incapacity Concerns, Social Concerns, and Losing Control Concerns – loading on a single higher-order factor, Anxiety Sensitivity. The reliability was acceptable for the total scale. Hierarchical multiple regressions show that the CASI makes a significant contribution in predicting anxiety. conclusion: The data support the relevance of the French CASI in the assessment of AS in nonclinical children. [less ▲]

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See detailAvaliação da Qualidade de Vida Infantil: O Inventário Sistémico de Qualidade de Vida para Crianças
Fonseca, Marta; Missotten, Pierre ULg; Etienne, Anne-Marie ULg et al

in Psicologia, Reflexão e Crítica = Psychology, Reflection and Criticism (2014), 27(2),

Introduction: Children’s quality of life evaluation has specific methodological aspects. Objective: To examine the psychometric properties of the Portuguese version of the Child Quality of Life Systemic ... [more ▼]

Introduction: Children’s quality of life evaluation has specific methodological aspects. Objective: To examine the psychometric properties of the Portuguese version of the Child Quality of Life Systemic Inventory (CQLSI), which is based on an innovative conceptual and methodological approach to quality of life self-assessment, namely by being interactive and playful, having a psychometry which operates several scores and allowing an analysis of each domain of life. Methods: 120 Portuguese children, from 8 to 12 years old. Results: Internal consistency of the four scores of the CQLSI (State, Goal, Rank and Gap) is satisfactory; all scores have their own specificity. Data show convergent validity. On the other hand, no satisfactory factorial structure was found. Conclusion: Feasibility and psychometric adequacy of the CQLSI Portuguese version seems demonstrated. [less ▲]

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See detailThe Anxiety Sensitivity in Children: Developmental Perspective
Stassart, Céline ULg; Etienne, Anne-Marie ULg

Poster (2013, July 19)

Introduction. Anxiety sensitivity (AS) is the fear of anxiety-related sensations due to beliefs that these sensations will lead to physical illness, social embarrassment, loss of control and mental ... [more ▼]

Introduction. Anxiety sensitivity (AS) is the fear of anxiety-related sensations due to beliefs that these sensations will lead to physical illness, social embarrassment, loss of control and mental incapacitation. AS plays a central role in the etiology and maintaining of fear and anxiety. This work examines the gender and age effect on the AS scores. Method. Two hundred children aged 9 to 13 years completed the Childhood Anxiety Sensitivity Index (CASI). Results. Hierarchical multiple regression analyses showed that the sex and the interaction Sex*Age explain significantly the CASI scores. The interaction indicated that girls have higher AS than boys at the age of 9, 10 and 11 but not to 12 and 13 years. Discussion. Consistent with several studies, girls have higher CASI scores than boys. However, this difference disappears at the entrance of adolescence. This developmental observation is important in a prevention perspective of AS. [less ▲]

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See detailEvaluating the psychological impact of practice dispatch-assisted cardiopulmonary instructions using the ALERT protocol: preliminary results in Liege dispatching centre.
Hirtz, Elodie; Ghuysen, Alexandre ULg; STIPULANTE, Samuel ULg et al

Poster (2013, July)

ABSTRACT Background. The ALERT algorithm, an effective compression-only phone cardiopulmonary resuscitation (CPR) protocol has the potential to help bystanders initiate CPR. This study evaluates the ... [more ▼]

ABSTRACT Background. The ALERT algorithm, an effective compression-only phone cardiopulmonary resuscitation (CPR) protocol has the potential to help bystanders initiate CPR. This study evaluates the psychological impact of the CPR’s practice on untrained persons (UP). Methods. This is a quasi experimental longitudinal study (n = 153). We used: demographics data, CPR’ emotional characteristics; the Peritraumatic Dissociative Experiences Questionnaire ; the Way of Coping Check List and the Impact of Event Scale. Findings. Two psychological profiles: UP at high risk to develop a post traumatic disorder (higher average scores ; high emotional distress during the CPR) versus UP at low risk. Discussion. These preliminary results highlight the importance of identifying the psychological profile of the UP. For a CPR, UP at high risk should be treated differently: first, take the time to reduce emotional distress and then only talk about the CPR. This step could reduce the risk for PTSD [less ▲]

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See detailNew format of the quality of life systemic inventory for children (QLSI-C): preliminary results
Toucheque, Malorie ULg; Tilkin, Caroline; Etienne, Anne-Marie ULg

Poster (2013, July)

Background: This study assesses the test-retest reliability of the QLSI-C iPad version. Methods: Sample consisted of 40 children aged 8 to 12 years which completed QLSI-C twice over a two-week delay ... [more ▼]

Background: This study assesses the test-retest reliability of the QLSI-C iPad version. Methods: Sample consisted of 40 children aged 8 to 12 years which completed QLSI-C twice over a two-week delay. Participants were divided into 3 groups: 13 participants completed iPad (T0) – paper (T1) version, 13 others filled paper (T0) – iPad (T1) and 14 answered iPad (T0) – iPad (T1). Findings: Analysis of variance indicates that group effect (F(2,37) = 1,27, p = 0,29) and time effect (F(2,37) = 0,04, p= 0,84) is not statistically significant nor the interaction effect (F(2,37) = 0,08 p = 0,92). Correlations for the 5 global scores between iPad – iPad version is from .63 to .91 and between the 2 different formats is from .40 to .87. Discussion: QLSI-C test-retest stability and paper – iPad version equivalence are good. This new format is more attractive for children, decreases time for administration and makes easier the encoding. [less ▲]

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See detailPreliminary results of the Quality of Life Systemic Inventory for children in Pediatric Cystic Fibrosis: A tool for clinical interventions?
Toucheque, Malorie ULg; Etienne, Anne-Marie ULg

Poster (2013, June 14)

Objective: this study examined the generic and CF-specific QOL in CF children using a tool based on a modular clinical approach. Methods: Sample consisted of 12 CF children and 12 healthy children aged 8 ... [more ▼]

Objective: this study examined the generic and CF-specific QOL in CF children using a tool based on a modular clinical approach. Methods: Sample consisted of 12 CF children and 12 healthy children aged 8 to 12 years, matched by age and sex. The Quality of Life Systemic Inventory for Children (QLSI-C) assess both generic (20 items) and CF-specific (6 items) QOL. CF-specific module is empirically created from CFQ-R and discussion with medical staff. QLSI-C is a dynamic tool, using a VAS, which considers QOL (gap) like the difference between the present situation (state) and the expectations (goal). This difference is weighted by the importance (rank) that children assign for each life domains. QLSI-C is different from PedQoL, which consider QOL like an assessment of state score only. Results: Difference between CF and healthy children for the QOL score approached significance (F=3.63; p=0.07). Results by items show a significant difference for “autonomy” (F=4.30; p=0.05) and “frustration tolerance” (F=4.60; p=0.04) between the two groups. In addition, global scores in CF-specific module is correlated with global score in generic module for CF children (r=0.66 to 0.96). Assessment of QOL is the same for both generic (M=3.76) and CF-specific (M=3.76) module (p=0.53). Finally, descriptive statistics demonstrate that items which reflect the best QOL in CF children were based on social support unlike healthy children. Conclusion: QLSI-C is a clinical tool which distinguishes between children with CF and healthy children. Originality of this tool is strengthened by the consideration of individual life plan taking into account the particular situation of children with CF. [less ▲]

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See detailThe effect of communication skills training on residents' physiological arousal in a breaking bad news simulated task
Meunier, Julie; Merckaert, Isabelle; Libert, Yves et al

in Patient Education & Counseling (2013), 93(1), 40-47

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See detailPsychosocial needs and perception of inequity: How spouses react to the cancer of their partner?
Wagener, Aurélie ULg; Bragard, Isabelle ULg; Jonius, Bénédicte et al

in 2013 BAPS Annual Meeting : Conference booklet (2013, May 28)

Background. Several studies have highlighted the importance of psychosocial needs in cancer patients’ spouses. Our study’s aim was to reduce these spouses’ needs, using a combination of two ... [more ▼]

Background. Several studies have highlighted the importance of psychosocial needs in cancer patients’ spouses. Our study’s aim was to reduce these spouses’ needs, using a combination of two psychotherapeutic methods: 1. Psychosocial needs’ organization into a hierarchy; 2. Problem-solving method. We also assessed perception of inequity, which is a new concept used in psycho-oncology. This perception focusses on two feelings that spouses might experience in their relationships: firstly, the feeling of overbenefit and underinvestment; secondly, the feeling of underbenefit and overinvestment. Method. A longitudinal design with three assessments (T0,T1,T2) and two groups (experimental, control) was employed. Spouses fulfilled questionnaires: socio-demographic questionnaire, Psychosocial Needs Inventory, Perception of Inequity, Hospital Anxiety and Depression Scale. At T0, all participants organised their psychosocial needs into a hierarchy. Experimental group practiced problem-solving method before control group. Indeed, experimental group practiced it between T0 and T1 while control group practiced it only between T1 and T2. Results. Thirty-seven spouses participated: N experimental group=19; N control group=18. Whenever the combination was given, repeated measures’ ANOVAs highlighted a significant decrease in unsatisfied psychosocial needs when participants have received both methods. Nevertheless, our results did not replicate previous findings according to which spouses experience a higher feeling of overinvestment and underbenefit than feeling of underinvestment and overbenefit. Discussion. Our results underline the interest of proposing psychotherapeutic methods to cancer patients’ spouses to reduce unsatisfied psychosocial needs: clinical implications will be further discussed. Moreover, perception of inequity is a significant concept in psycho-oncology which consequences will also be discussed. [less ▲]

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See detailPsychosocial needs and perception of inequity: How spouses react to the cancer of their partner?
Wagener, Aurélie ULg; Bragard, Isabelle ULg; Jonius, Bénédicte et al

Poster (2013, May 28)

Background. Several studies have highlighted the importance of psychosocial needs in cancer patients’ spouses. Our study’s aim was to reduce these spouses’ needs, using a combination of two ... [more ▼]

Background. Several studies have highlighted the importance of psychosocial needs in cancer patients’ spouses. Our study’s aim was to reduce these spouses’ needs, using a combination of two psychotherapeutic methods: 1. Psychosocial needs’ organization into a hierarchy; 2. Problem-solving method. We also assessed perception of inequity, which is a new concept used in psycho-oncology. This perception focusses on two feelings that spouses might experience in their relationships: firstly, the feeling of overbenefit and underinvestment; secondly, the feeling of underbenefit and overinvestment. Method. A longitudinal design with three assessments (T0,T1,T2) and two groups (experimental, control) was employed. Spouses fulfilled questionnaires: socio-demographic questionnaire, Psychosocial Needs Inventory, Perception of Inequity, Hospital Anxiety and Depression Scale. At T0, all participants organised their psychosocial needs into a hierarchy. Experimental group practiced problem-solving method before control group. Indeed, experimental group practiced it between T0 and T1 while control group practiced it only between T1 and T2. Results. Thirty-seven spouses participated: N experimental group=19; N control group=18. Whenever the combination was given, repeated measures’ ANOVAs highlighted a significant decrease in unsatisfied psychosocial needs when participants have received both methods. Nevertheless, our results did not replicate previous findings according to which spouses experience a higher feeling of overinvestment and underbenefit than feeling of underinvestment and overbenefit. Discussion. Our results underline the interest of proposing psychotherapeutic methods to cancer patients’ spouses to reduce unsatisfied psychosocial needs. [less ▲]

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See detailGender Role Orientation, Emotional Intelligence and Anxiety Symptoms in Children
Stassart, Céline ULg; Dardenne, Benoît ULg; Etienne, Anne-Marie ULg

Poster (2013, April 18)

According to Gender Role Theory, girls and boys learn to develop interests and attitudes consistent with their gender, resulting in behaviors and characteristics known as “masculine” and “feminine” ... [more ▼]

According to Gender Role Theory, girls and boys learn to develop interests and attitudes consistent with their gender, resulting in behaviors and characteristics known as “masculine” and “feminine” (Golombok & Fivush, 1994). Several authors have claimed that gender role, more than sex (male vs. female), explains the higher prevalence of anxiety in girls than in boys (e.g., Palapattu, Kingery, & Ginsburg, 2006). The expression of fear and anxiety is accepted and even encouraged among girls but is inconsistent with the masculine gender role: Boys are expected to face their fears and use adaptive behavior to handle the situation (Bem, 1981). Although the link between anxiety and gender role is well known for adults, empirical evidence concerning children is much scarcer (Palapattu et al., 2006). In this study, we first examine the importance of gender role in children’s anxiety. We also investigate the influence of a possible moderator in the relation between anxiety and gender role: emotional intelligence (EI). EI has been shown to protect against the development of anxiety in children (Williams, Daley, Burnside, & Hammond-Rowley, 2010). Our sample included 200 Belgian children (105 girls) aged 9 to 13 years old. The questionnaires used were the State-Trait Anxiety Inventory for Children (STAIC; Spielberger, 1973), the Trait Emotional Intelligence Questionnaire Child Form (TEIQue-CSF; Mavrovelli & Petrides, 2008), and the Children’s Personal Attributes Questionnaire (CPAQ; Hall & Halberstadt, 1980). The latter questionnaire is composed of three subscales: Masculinity (M, male-stereotyped traits but socially desirable in both sexes, e.g., leadership), Femininity (F, female-stereotyped traits but socially desirable in both sexes, e.g., kindness), Masculinity-Femininity (M-F, traits socially more acceptable for one sex or the other, e.g., emotional vulnerability for females and aggressiveness for males). High scores on the M-F scale indicate tendencies toward masculinity. Hierarchical multiple regression analyses were conducted to investigate the effect of gender role on the STAIC score beyond biological sex and EI as a moderator in relations between gender role and anxiety. Results indicated that gender role explains the anxiety score better than biological sex. Also, EI and the interaction between EI and M-F scores (TEIQue-CSF*M-F) were significant predictors of anxiety score. The children with low M-F scores and low EI had significantly higher levels of anxiety, while those with high M-F scores and high EI had the lowest levels of anxiety. These findings reveal not only the effect of gender role in the development of anxiety, but also the moderating effect of EI. [less ▲]

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See detailIs it possible to improve radiotherapy team members’ communication skills. A randomized study assessing the efficacy of a 38h communications skills training program
GIBON, Anne-Sophie; MERCKAERT, Isabelle; LIENARD, Aurore et al

in Radiotherapy & Oncology (2013), 109(1), 170177

Background and purpose: Optimizing communication between radiotherapy team members and patients and between colleagues requires training. This study applies a randomized controlled design to assess the ... [more ▼]

Background and purpose: Optimizing communication between radiotherapy team members and patients and between colleagues requires training. This study applies a randomized controlled design to assess the efficacy of a 38-h communication skills training program. Material and methods: Four radiotherapy teams were randomly assigned either to a training program or to a waiting list. Team members’ communication skills and their self-efficacy to communicate in the context of an encounter with a simulated patient were the primary endpoints. These encounters were scheduled at the baseline and after training for the training group, and at the baseline and four months later for the waiting list group. Encounters were audiotaped and transcribed. Transcripts were analyzed with content analysis software (LaComm) and by an independent rater. Results: Eighty team members were included in the study. Compared to untrained team members, trained team members used more turns of speech with content oriented toward available resources in the team (relative rate [RR] = 1.38; p = 0.023), more assessment utterances (RR = 1.69; p < 0.001), more empathy (RR = 4.05; p = 0.037), more negotiation (RR = 2.34; p = 0.021) and more emotional words (RR = 1.32; p = 0.030), and their self-efficacy to communicate increased (p = 0.024 and p = 0.008, respectively). Conclusions: The training program was effective in improving team members’ communication skills and their self-efficacy to communicate in the context of an encounter with a simulated patient. Future study should assess the effect of this training program on communication with actual patients and their satisfaction. Moreover a cost-benefit analysis is needed, before implementing such an intensive training program on a broader scale. [less ▲]

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See detailLes fonctions cognitives au commencement d’une nouvelle ligne de traitement chez des patients âgés atteints d’un cancer hématologique
Jonius, Bénédicte; Libert, Yves; Bragard, Isabelle ULg et al

in Psycho-Oncologie (2013), 7(2), 118-129

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See detailIs it possible to improve the breaking bad news skills of residents when a relative is present? A randomised study.
Merckaert, Isabelle; Liénard, Aurore; Libert, Yves et al

in British Journal of Cancer (2013), 109

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See detailA French Translation of the Revised Childhood Anxiety Sensitivity Index (CASI-R): Its Factor Structure, Reliability, and Validity in a Nonclinical Sample of Children Aged 12 and 13 Years Old.
Stassart, Céline ULg; Hansez, Isabelle ULg; Delvaux, Muriel ULg et al

in Psychologica Belgica (2013), 53(1), 57-74

This study (n = 237 Belgian children; mean age = 12.3 years; SD = 0.41) examined the factor structure, reliability, and validity of the French translation of the Revised Childhood Anxiety Sensitivity ... [more ▼]

This study (n = 237 Belgian children; mean age = 12.3 years; SD = 0.41) examined the factor structure, reliability, and validity of the French translation of the Revised Childhood Anxiety Sensitivity Index (CASI-R). We obtained a hierarchical factor structure with four lower-order factors – “fear of cognitive dyscontrol,” “fear of publicly observable anxiety reactions,” “fear of respiratory symptoms,” and “fear of cardiovascular symptoms” – loading on a single higher-order factor (“anxiety sensitivity”). The French translation revealed acceptable internal consistency and a good interitem structure. Anxiety sensitivity was connected with the anxiety and depression scales but the correlation between the CASI-R and the depression score was more modest than that between the CASI-R and the trait anxiety score, indicating that the CASI-R is an anxiety scale. Girls reported more fear of anxious feelings than boys. This revised version allows for a more fine-grained assessment of the anxiety sensitivity concept. [less ▲]

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See detailIncidence du burnout parmi les radiothérapeutes belges
Bragard, Isabelle ULg; Hansez, Isabelle ULg; Etienne, Anne-Marie ULg et al

Poster (2012, December 18)

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See detailEtude longitudinale des besoins psychosociaux des conjoints de personnes atteintes d'un cancer : hiérarchisation et résolution de problème
Wagener, Aurélie ULg; Jonius, Bénédicte; DEVOS, Martine ULg et al

Poster (2012, December 18)

The existence and importance of psychosocial needs experienced by spouses of cancer patients have been demonstrated repeatedly. In order to reduce these needs, our study assesses the efficacy of the ... [more ▼]

The existence and importance of psychosocial needs experienced by spouses of cancer patients have been demonstrated repeatedly. In order to reduce these needs, our study assesses the efficacy of the combination of two psychotherapeutic methods: psychosocial needs' organisation into a hierarchy and problem solving. Our longitudinal and randomized study comprises three assessment times, separated from three weeks, (T0, T1 and T2) and two groups (experimental and control). At T0, both groups realize the hierarchy of needs. Between T0 and T1, only the experimental group practices problem solving. Then, between T1 and T2, the control group practices this method too. Questionnaires administered at each assessment time are: sociodemographic questionnaire, Hospital Anxiety and Depression Scale (HADS), Psychosocial Needs Inventory (PNI), self-efficacy questionnaire (GSES). Between T0 and T1, a general improvement in scores is expected in both groups: it is expected to be higher in the experimental group who completed the problem solving. Between T1 and T2, scores in the control group should improve to join those obtained by theexperimental group at T1. Thirty-seven people participated: experimental group (N=19, male=12, female=7) and control group (N=18, male=11, female=7). The results confirm our initial hypotheses and emphasize the importance of taking care of cancer patients' spouses. [less ▲]

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See detailQualité de vie des enfants atteints de mucoviscidose et de leurs parents: Quels sont les prédicteurs?
Toucheque, Malorie ULg; Lemétayer, Fabienne; Missotten, Pierre ULg et al

Poster (2012, December 17)

Introduction. La mucoviscidose est une maladie génétique grave, limitant la durée de vie du patient et entraînant de nombreuses complications. Les progrès scientifiques et médicaux ont conduit à ... [more ▼]

Introduction. La mucoviscidose est une maladie génétique grave, limitant la durée de vie du patient et entraînant de nombreuses complications. Les progrès scientifiques et médicaux ont conduit à l’augmentation de l’espérance de vie, de sorte que l’âge moyen de survie est d’environ 40 ans. Dans ce contexte, la qualité de vie (QV) est devenue un objectif thérapeutique important pour les patients atteints de mucoviscidose. Cependant, malgré un intérêt croissant pour le QV, celle-ci a été sous-investiguée chez les enfants âgés de 6 à 12 ans. Parallèlement, on observe que les professionnels de la santé ne sont plus seuls à intervenir dans la prise en charge du jeune patient. L’essentiel du traitement ayant lieu à la maison, la responsabilité concernant la gestion de la maladie reposent désormais sur les épaules de la famille. Ainsi, les parents d’enfants atteints de mucoviscidose doivent faire face à une variété de stresseurs pouvant entraîner d’importantes implications pour le bien-être psychosocial du système familial. Ces dernières années, le rôle de la famille dans l’adaptation des enfants atteints d’une maladie chronique a reçu une attention particulière. À l’heure actuelle, on reconnaît l’importance et l’influence de la relation parent-enfant dans de multiples aspects du développement social et émotionnel de l’enfant. Cependant, dans les recherches en pédiatrie, les pères sont sous-représentés. C’est principalement la relation mère-enfant malade qui a été pris en considération en ignorant la relation père-enfant malade. Objectifs. Ce projet de thèse s’oriente autour de trois objectifs : (1) étudier l’impact de la mucoviscidose sur la QV et, de manière plus générale, sur l’ajustement de l’enfant et de ses parents ; (2) comprendre le lien entre l’ajustement des parents et celui de l’enfant et identifier les mécanismes spécifiques par lesquels les parents influent sur la QV de l’enfant ; (3) étudier l’effet du genre. Méthodologie. Chaque triade (enfant, père et mère) devra répondre à un ensemble de questionnaire évaluant l’ajustement émotionnel, cognitif et comportemental ainsi que le fonctionnement familial et la qualité de vie. Afin d'isoler la spécificité de la mucoviscidose, trois groupes seront créés : mucoviscidose – asthme – sain. Le début du recrutement est prévu en septembre 2012. Contribution. Cette recherche se veut intégrative et contribuera à mettre en évidence les facteurs prédicteurs de la résilience et des difficultés d’ajustement chez les enfants souffrant de mucoviscidose et leur parent. Les résultats contribueront à l’avancement des connaissances et nous permettraient d’influer sur les initiatives de prévention. [less ▲]

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